Kicking off Dysautonomia Awareness Month!

Hello loves! How is everybody? I am doing pretty well today. I spent the majority of the day doing homework and helping (as much as I could) my family move some boxes over to our new house! I am not sure if I mentioned it on this blog, but my family and I are moving. We have to be out of our house in 3 weeks! I’m excited because in our new house, I get to stay in the loft above the garage – so I get a little bit of freedom for the first time in a long time and I am so psyched!

Anyways, on to what this post is about and that is…Dysautonomia. I typically do not go into detail (at least I haven’t recently) on my blog about the ins and outs of all my illnesses. BUT, since it is Dysautonomia awareness month, I thought I would write a post as tribute!

I have been afraid of going public about the illnesses and diseases that I suffer from. Yes, if you follow my Instagram you will see that I do make some posts regarding my health, but I do not spell out in the bio what illnesses I have, and I typically do not go into detail or do health updates. Additionally, Facebook is off limits when it comes to my chronic illnesses too. The general public I do not want to know. The only places where I have felt comfortable delving into my chronic illnesses as well as mental illnesses are on this little blog, and my Tumblr. However, this year has been a little different. For the first time, I actually raised awareness on my Facebook page for the metabolic disease that I have, because the awareness week was just a couple weeks ago. I also just changed my Facebook profile picture to support Dysautonomia awareness. I was actually quite nervous to take these little steps. I am normally a very private person. But these diseases have affected my life in such a way, that I do not want to “hide” it any more. I am not ashamed that I have been diagnosed with these illnesses, because honestly, I believe it has made me stronger. Dysautonomia, as well as my other conditions, I truly believe have helped to make me the person I am today. I have grown because of them. I may be weak, and tired, and dizzy. I may pass out or come close to it, I may have to use a walker every once in a while (it used to be all the time) but if someone were to ask me do you regret any of this happening to you…you know what I would say? Absolutely not. Don’t get me wrong – chronic illness is HARD, mental illness is HARD, but to be able to get through that stuff? It just proves that you are fighter. I am also a firm believer in that everything happens for a reason. We may not know what that reason is, and it may take years later to really discover the reason, but there is a reason nonetheless; God has a plan for us. If my plan involves illness, so be it. I will deal with the cards that I have been dealt with.

So, Dysautonomia awareness month. I am raising awareness here, on my Tumblr, on my Facebook, and also on my Instagram! I follow the Dysautonomia Project on Instagram, and they have a 31 day Dysautonomia photo challenge. It is only day three, but I have completed the challenge thus far. It was scary to start it, because there are some people on my Instagram who I was not sure I wanted to them to know some of the details of my illness. BUT, there are a lot of people who I follow who are brave enough to be open about their conditions, and I wanted to feel that freedom of just letting go and not worrying what other people think. That is not always easy; I always worry about what others think and what others would think of me if I was open about some of my struggles. But then, I think, you may just be able to help someone out there, in some way, or provide support or advice to others who are struggling/going through similar issues. It is also a way for me to connect to others with similar problems, maybe they can even help me when I am having a bad day.

Before I end this post, I want to discuss my evening this past Saturday. On October 1st,me, my boyfriend, and two of my good friends met at the Rainforest Café for dinner, and after that we saw Niagara Falls light up in turquoise for Dysautonomia Awareness Month. It was so much fun! That was my first time attending an event for Dysautonomia, or any of the illnesses I have, and it was such a good time. The love I felt from my friends was overwhelming. We took pictures, played with glow sticks and wrapped ourselves up in streamer – you know – all the typical things that an almost 25 year old girl does…Just kidding. We were being so silly, but it was honestly one of the best nights that I have had. I was so glad that I actually worked up the courage to attend this event, even though I was nervous and felt ashamed and guilty. Ashamed that I have the illness in the first place, and embarrassed that people were coming FOR ME. But if I just focus on how much fun that night was, and how much support and love I have around me, those negative feelings dissipate.

HAPPY DYSAUTONOMIA AWARENESS MONTH!

For those who suffer from the illness, stay strong and keep fighting!

I wish everyone a good week 🙂

 

Much love,

Claire

 

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